The Waiting Game + Rambling

We've been preparing ourselves for the Glenn for over a month, we were told last week the operation would for sure be THIS week. It is now Wednesday & we are still waiting for the team to tell us the day. It usually happens that we get bumped for trauma operations, and I wouldn't be surprised if this is the case this week as well. We keep praying for timing, the timing of the operation needs to be perfect.. the day, hour & minute of the operation. Even though we feel frustrated we can only hope this means we are still waiting for the perfect time of surgery.

Shane's had some ups & downs this past week, which is likely also a reason we are still on the edge about a day. His heart rate was quite high - in the 130's, he's usually in the 120's.. thankfully all that needed to be done was a correction of a medication dose. He's smiley, happy and just amazing. We've been out on day pass quite a bit getting to know more families at RMH. It's nice.

Today we are also remembering our baby who went to heaven 2 years ago. We had a miscarriage at 11 weeks, a lot of the time I feel this baby is watching over Shane & giving him the strength he needs to carry on & fight this battle. We wish we could hold you now, Mommy & Daddy love you and will one day see you. <3

Since having Shane, I have been up here at the hospital & RMH non-stop. I've only been home about 4 times since his birth. Matt stays back home a fair amount, for work & Nora stays with friends & family 90% of the time. I've had her up here with me this past week, and I am desperate to have my family together in one place.. more so one city. Matt is able to apply for a transfer within his company up to E-town where our little man is. This would be SUCH a blessing, to be able to re-locate our family here. We could be here for years yet, and set-up we have now is too stressful on everyone. It's not fair to Nora that's for sure & is putting a LOT more stress on myself & Matts marriage. He has applied for the transfer, and now we wait. . .